[Article] Clinical holding with children who display behaviours that challenge

This article explores the prevalent clinical holding techniques used by nursing staff caring for children with challenging behaviour.  This 2 year study explored current practice and it is hoped the findings will develop into a training package,

Page, A., McDonnell, A., Gayson, C., Moss, F., Mohammend, N., Smith, C. & Vanes, N. 2015. Clinical holding with children who display behaviours that challenge.  British Journal of Nursing 24 (21) p 1086-1089.

[Article] Understanding about SUDEP - Sudden Unexpected Death in Epilepsy

Sudden Unexpected Death in Epilepsy (SUDEP) is rare.    Written by a GP who specialises in epilepsy, this article from the Epilepsy Society  Magazine discusses the prevalence of SUDEP in the UK, who is more likely to be at risk and steps that can be taken to try and prevent this happening.

Rogers, G. 2014.  Understanding about SUDEP.  Epilepsy Review Magazine. Issue 10, Summer

Access the article here

[Article] What does "terminal sedation" mean? Results of a UK survey?

The online survey was undertaken to prompt debate on what terminal sedation should or should not be.   There were 514 respondents in 3 categories: MPs and Lords, palliative care professionals and members of the public.  The survey aimed to ascertain their views on whether terminal sedation differed from assisted suicide/euthanasia, gain responses to a number of hypothetical patient scenarios, and their views on respect, beneficence and lawfulness in relation to the patient scenarios.  The findings are discussed and recommendations made.

Smith, T. 2016.  What does "terminal sedation" mean?  Results of a UK survey?  European Journal of Palliative Care, 23 (2) p 84-87.

To request a copy, click here fill in form and return to library.

[Guidelines] 2016 Rainbows Basic Symptom Control Guidance

New updated version of the Rainbows Paediatric Palliative Care Symptom Control Manual, it provides very comprehensive guidelines for treating a wide range of symptoms experienced by neonates and children with life limiting conditions.  The new edition features a new chapter on End of Life Care, and major re-writes on Pain and Gastrostomy Care.  Also contains the 2014 3rd edition of the APPM Master Formulary.

Together for Short Lives (2016) Basic Symptom Control in Paediatric Palliative Care: The Rainbows Children's Hospice Guidelines.   Edition 9.5.

Available to download

[Article] How to perform a tracheostomy dressing and inner cannula change.

A clinical skills article in the "How to" series, it describes the preparation and equipment, procedure and evidence base for performing a tracheostomy dressing and tube change.

Credland, N. (2016) How to perform a tracheostomy dressing and inner cannula change.  Nursing Standard, 30 (30) p 34-36.

To request a copy, click here fill in form and return to library.

[Article] Care certificate standard 7 and 8: Privacy and Dignity, and Fluids and Nutrition

Part of a series of articles to support healthcare assistants undertaking the Care Certificate, this article looks at the 10 elements of high quality dignified care and lists many examples in which dignity can be promoted.  It then look at fluids and nutrition, highlighting the ways a HCA can assist in eating and drinking, additional equipment to consider and who is more at risk of malnutrition.

Peate, I. 2016.  Care certificate standard 7 and 8: Privacy and Dignity, and Fluids and Nutrition.  British Journal of Healthcare Assistants 10 (2) p 95 - 99.

[Article] Care certificate standard 9 and 10: mental health, dementia and learning disabilities; and safeguarding adults

Those with mental health conditions, dementia and learning disabilities will have unique needs.  The article discusses stigma and discrimination, the mental health act, the mental capacity act and a number of mental health conditions.  It provides an overview of dementia, the signs and  and treatment options, and the same for those with learning disabilities.  Finally it provides information on safeguarding, how to recognise common forms of abuse, identify those who are more at risk of abuse and the importance of recognising and reporting.

Peate, I. 2016. Care certificate standard 9 and 10: mental health, dementia and learning disabilities; and safeguarding adults.  British Journal of Healthcare Assistants, 10 (3) p 140-143.

[Article] Creating and empowerment in a children's hospice community

Children's Hospice Association Scotland (CHAS) uses a model of care that combines clinical expertise and artistic activities.  This article explains the benefits of this approach through two examples of recent music and arts projects: CHAS the Opera, and Art 21.

Scott, R., Sheridan, M., Blair, A. & Stewart, L. 2016. Creating and empowerment in a children's hospice community.  European Journal of Palliative Care, 33 (1) p 28-31

To request a copy, click here fill in form and return to library.

[Article] The development and evaluation of a holistic needs assessment within children's palliative care

An article on the Holistic Needs Assessment Tool used at East Anglia's Children's Hospices (EACH) Two years ago the hospice recognised the need for services to move away from a "one size fits all" approach to a personalised care planning approach   This article reports on the development, implementation pilot testing and evaluation of a holistic needs assessment tool. Feedback was positive from healthcare staff using the tool, leading to improved communication with families, improved documentation and the wish to embed the tool into daily practice.

Hartley, G., Berger, Z. & Maynard, L. 2016.  The development and evaluation of a holistic needs assessment within children's palliative care.  International Journal of Palliative Nursing. 22 (5) p 236 - 242

To request a copy, click here fill in form and return to library.

[Article] Creating an environment for learning

The importance of developing a high quality practice placement is discussed in the Nursing and Midwifery Council's Standards to Support Learning and Assessment in Practice (SSLAP), and in particular, the importance of "creating an environment for learning".  This article provides learning activities and suggests ways in which mentors and educators can undertake various self-assessments, enabling them to gather evidence to demonstrate how they can meet and maintain this requirement.

Houghton, T. (2016).  Creating an environment for learning.  Nursing Standard, 30 (29) p 40 - 48.

To request a copy, click here fill in form and return to library.

[Book chapter] Family resilience relative to children with severe disabilities

When a child is born who has severe disabilities identified at birth, the hopes, dreams and expectations that parents have are dramatically changed.   This chapter reviews the literature, the psychological impact and factors that facilitate resilience.  It also looks at the differing impact on fathers, siblings, and the issue of how to parent.

Harsthorne, T. Schafer, A. Stratton K. & Nacaroto, T. 2013.  Family resilience relative to children with severe disabilities.  In: Becvar, D. (Ed). Handbook of Family Resilience.  Springer.

To request the chapter, click here fill in form and return to library.

[Book chapter] Family resilience in the wake of loss: a meaning-orientated contribution

The aim of this chapter is to explore what is meant by resilience in the context of loss and grief.  Drawing on family stories, the chapter weaves these stories through the review, and discusses several implications for therapists striving to respect and promote resilience within families.

Hooghe, A. & Neimeyer, R. A. (2015)  Family resilience in the wake of loss: a meaning-orientated contribution: In;  Becvar, D. (ed). Handbook of Family Resilience.  Springer.

To request the chapter, click here fill in form and return to library.

[Article] Mindfulness practices for loss and grief

This article looks at potential of mindfulness practices in therapy, including it's uses in palliative care and in dealing with loss and grief.


Hasha, M. 2015.  Mindfulness practices for loss and grief.  Bereavement Care, 34 (1) p 24 - 28

[Book chapter] Intimations of Mortality: Art therapy with children and young people with life-limiting illnessess

The chapter focuses on the issues through an extended case study, supported by further case vignettes.  Issues covered include the effect of a life-limiting illness on the whole family, the value of the reflective space offered by art therapy, and the sick child's need to develop normally.  This is balanced by the need for at times for extra care, the pain and loss of the child who loses independence and the ability to keep up with their peers.  The author draws on developmental and attachment theories, and family dynamics.


Bissonet, J. 2015.  Intimations of Mortality: Art therapy with children and young people with life-limiting illnesses.   In Liebmann, S. & Weston, S. (eds). Art therapy with physical conditions.  Jessica Kingsley.

[Book Chapter] The power of the image in memory-making with children with life-limiting conditions.

This chapter looks at the role of art therapy in family support work in a children's hospice. It starts by describing the client-centred philosophy of the hospice and the varied style and content of interventions offered to clients.  It describes the use of "memory-making" techniques, such as photos, stories, scrapbooks, and momentos.  Several case studies show how these techniques are used in different situations and show how art therapy and image-making can link past, present and future.


Simpson, C. 2015. The power of the image in memory-making with children with life-limiting conditions.  In Liebmann, S. & Weston, S. (eds). Art therapy with physical conditions.  Jessica Kingsley
 

[Book Chapter] "A hidden wholeness" Spiritual care in a children's hospice

This chapter explores chaplaincy and spiritual care in children's hospices and paediatric palliative care, by investigating the connected themes of wholeness holiness and healing.

Clayton, M. 2015.  Chapter 16: A hidden wholeness" Spiritual care in a children's hospice. In: Pye, J., Sedgwick, P. & Todd, A.   Critical care: delivering spiritual care in healthcare contexts.  Jessica Kingsley.

To request a copy, click here fill in form and return to library.

[Article] What are the indications for probiotics in children?

This review aims to summarise the current evidence on the efficacy and safety of specific probiotics and help healthcare professionals make evidence based decisions on the indications for using specific probiotics in children.

Szajewsk, H. 2016. What are the indications for using probiotics in children?  Archives of Disease in Childhood, 101 (4) p 398-403.

To request a copy, click here fill in form and return to library.

[Article] The duty of candour: what it means for practicing nurses

Nurses now have a statutory and professional duty to be open and candid with patients about any errors in their care and treatment. A professional duty of candour is a key requirement of the new revised Nursing and Midwifery Council Code.  In this 2 page article the author gives a good overview of what this means and the impact for nurses.

Griffith, R. 2015. The duty of candour: what it means for practicing nurses.  British Journal of Nursing, 24 (21) p 1102 - 1102.

To request a copy, click here fill in form and return to library.

[ Article] Short break and emergency respite care: what options for young people with life-limiting conditions

With technological  and medical advancements, the number of young people with life-limiting conditions surviving into adulthood and requiring transition into adulthood is increasing. This article looks at what options are available for young people other than children's hospice care for respite care. Using semi-structured interviews and mixed-method survey, the findings showed that there were few or no appropriate short break and emergency care alternatives, creating anxiety for children's hospice users.  The authors conclude access to appropriate short break care is required to prevent lifelong negative consequences for young people with life-limiting conditions and their families.

Mitchell, T. Knighting, K. O'Brien, M. & Jack, B. 2016. Short break and emergency respite care: what options for young people with life-limiting conditions.  International Journal of Palliative Nursing, 22 (2) p 57 - 65.

To request a copy, click here fill in form and return to library.

[Article] Are genograms useful holistic assessment tools in palliative care? A literature review.

Genograms are increasingly used in palliative care to assess the emotional and practical support needs of patients and families.  A comprehensive search of the literature was taken undertaken to find evidence on their use in specialist palliative care settings.  The findings showed that there are benefits and drawbacks to using genograms as part of the assessment process and that it is important that other tools are examined to ensure the most effective and appropriate one is used. The author concludes that at present there is no definitive answer to their usefulness in palliative care.

Charnock, L. 2015. Are genograms useful holistic assessment tools in palliative care?  A literature review.  European Journal of Palliative Care, 23 (2) p 66 - 69.

To request a copy, click here fill in form and return to library.

[Report] Making the Case for Play: Findings of the Sense Public Inquiry

The inquiry was established in response to feedback from families of children with multiple needs who expressed concerns that they had fewer opportunities to access play services.  The report reveals the severe restrictions facing disabled children in accessing play, and results in disabled children missing out on opportunities  essential to their emotional, social and physical development identifies filings at every level.  The report calls for urgent action to address these inequalities.

SENSE, 2016.  Making the Case for Play: Findings of the Sense Public Inquiry into access to play opportunities for disabled children with complex needs. SENSE.

Available on loan from the library or download