With technological and medical advancements, the number of young people with life-limiting conditions surviving into adulthood and requiring transition into adulthood is increasing. This article looks at what options are available for young people other than children's hospice care for respite care. Using semi-structured interviews and mixed-method survey, the findings showed that there were few or no appropriate short break and emergency care alternatives, creating anxiety for children's hospice users. The authors conclude access to appropriate short break care is required to prevent lifelong negative consequences for young people with life-limiting conditions and their families.
Mitchell, T. Knighting, K. O'Brien, M. & Jack, B. 2016. Short break and emergency respite care: what options for young people with life-limiting conditions. International Journal of Palliative Nursing, 22 (2) p 57 - 65.
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