The paper examined the views and experiences of parents of children with life-limiting conditions on out of home respite care in Ireland. A total of 19 in-depth interviews were conducted with mothers and fathers. Each family reported vastly different needs and experiences of respite care. For all parents, regardless of their child's age or condition, home was the location of choice for care. Factors that concerned parents with out of home care included past experiences of in-patient care, staff turnover, trust and confidence in care providers, and travel and distance to respite centres. A new model of care based on the findings of this research is presented.
Ling, J., Payne, S., Connaire, K. & McCarron, M. 2016. Parental decision-making on using out of home respite in children's palliative care: findings of qualitative case study research - a proposed new model. Child: care, health and development, 42 (1) p 51-59.
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