This guidance explains what a child or young person may be going through both medically and psychologically. It offers practical strategies for ensuring a supportive reintegration back to school. Suggestions are given for how teachers, assistants and SENCO's can provide sustained and targeted support for pupils who face extended treatments, devastating long term side effects or an uncertain future.
The Royal Marsden and Cerebra, 2019. Guidance: Returning to school: a teachers guide for pupils with brain tumours, during and after treatment. 3rd edition.
Available to download
Produced by the East Anglia's Children's Hospices (EACH) Library & Information Service - www.each.org.uk/library
Web site: Stillbirth Stories
Stillbirth Stories is a UK online audio archive. It's a unique collection of interviews with parents and healthcare professionals talking about their experience of stillbirth. The web site consists of 22 interviews which can be listened to in full or as short clips, searchable by themes. Parental themes include: Being told your baby has died, Deciding about a post mortem and Pregnancy after loss. The healthcare staff themes include: Showing emotion, First experiences, and Talking to and supporting families.
Available at: http://stillbirthstories.org/
Article: Real experiences which increase empathy - using audio archive describing parents' and clinicians' experience of stillbirth
Perinatal death has an enduring effect on parents however healthcare professionals frequently report feeling unprepared to care for bereaved parents. This study evaluated parents' and professionals experiences of using an audio archive - www.stillbirthstories.org. For parents it was largely a helpful experience and for some reduced their feelings of loneliness and anxiety. All professionals found the archive helpful, stating it increased their empathy and understanding of parents emotions which improved their confidence that parents' needs could be met.
Beck, E. et al. 2019. Real experiences which increase empathy - using audio archive describing parents' and clinicians' experience of stillbirth. Bereavement Care, 38 (1) online.
Contact the Library for a copy
Contact the Library for a copy
Article: Nurses' perceptions of hospice care for deceased children following organ donation in hospice cool rooms
Following organ donation, bodies of children are generally cared for in hospital mortuaries or by funeral directors and their families are offered limited bereavement support. This article describes a partnership between an organ donation nursing team and a children's hospice where families were offered bereavement support from the hospice, and their child's body was cared for in a "cool room" after death. The research explored the perceptions and experiences of nurses' from both the hospice, and the organ donation team.
Tatterton, M. J. et al. A qualitative descriptive analysis of nurses' perceptions of hospice care for deceased children following organ donation in hospice cool rooms. International Journal of Palliative Nursing, 25 (4) p 166 - 175.
Contact the Library for a copy
Contact the Library for a copy
New book: Bringing up babies and young children who have very special needs
This book is about the support children and families might need. It describes the 3 essential elements of effective support: health, education and family support. It contrasts effective 21st century support with approaches that are out of date, and at worst insensitive and institutional.
Limbrick, P. 2019. Bringing up babies and young children who have very special needs. Interconnections.
Contact the library for a loan.
New Book: These precious little people
This short book has been written to support any child affected by the death of a baby during pregnancy or soon after birth. It's suitable for most ages with simple prose and beautiful illustrations.
Frankie Brunker and Gillian Gamble. 2019. These precious little people. 32 pages.
Frankie Brunker and Gillian Gamble. 2019. These precious little people. 32 pages.
Article: Enteral feeding related gastro-intestinal symptoms in neuro-disability
Written from an adult perspective, the article identifies some of the more common gastrointestinal symptoms that adults with neurological conditions experience on enteral feeding and explores some of the management strategies.
Manton, T. 2019. Enteral feeding related gastrointestinal symptoms in neuro-disability. Complete Nutrition. Feb/March 1 (19) p 10 - 13.
Contact the library for a copy
Contact the library for a copy
Article: Development and assessment of a measure of parent and child needs in pediatric palliative care.
In the US children's palliative and end of life care has no evidence-based needs assessment measure. This article describes the development of the Parent and Child Need Survey (PCNeeds) which incorporates issues specific to the pediatric palliative and hospice population. It includes the parent-child relationship, the illness' impact on the family and unique decision making needs. The study revealed the tool could be a useful tool in individual assessment, however the tool should also cover more diverse parent and patient populations and test areas related to the needs of siblings and parents' relationships.
Donnelly, J. et al. 2018. Development and assessment of a measure of parent and child needs in pediatric palliative care. Journal of Pain and Symptom Management, 55 (4) p1077-1084.
Contact the library for a copy
Contact the library for a copy
Guidance: Achieving consensus advice for paediatricians and other health professionals: on prevention, recognition and management of conflict in paediatric practice.
Conflict can arise between healthcare professionals and the parents of children not only where there is disagreement on the withdrawal or withholding of life sustaining treatment but also in more routine general care. This paper suggests practices which may reduce disharmony. This includes preventative management, identification of conflict, early management of conflict, escalation and conflict management.
Linney, M. 2019. Achieving consensus advice for paediatricians and other health professionals: on prevention, recognition and management of conflict in paediatric practice. Archives of Diseases in Childhood: May 2019 104 (5) p 413-417.
Contact the library for a copy
Contact the library for a copy
Guidance: Disagreements in the care of critically ill children
The care and treatment of babies and young children who are critically ill often involves complexity and uncertainty, and disagreements can arise between parents and healthcare staff about the best course of action. This briefing note summaries the possible causes of disagreements between parents and healthcare staff. It discusses the changing social contexts in which these issues arise and makes observations on actions that can be taken to prevent or more quickly resolve disagreements in future.
Nuffield Council of Bioethics. Disagreements in the care of critically ill children.
Article: Use of personal protective equipment in nursing practice
Personal protective equipment (PPE) such as gloves, aprons, and eye protection play an important role in the prevention and control of infection for all healthcare staff. This article defines PPE and it's components, outlining when these items should be used and the procedures for putting on and removing them. It includes a self assessment quiz at the end and could be used as part of the 35 CPD hours required for revalidation.
Brown, L. et al. 2019. Use of personal protective equipment in nursing practice. Nursing Standard, 34 (5) p 59 - 66.
Contact the library for a copy
Contact the library for a copy
Article: Infection control: hand hygiene using alcohol-based hand rub
This article, explains the importance of hand hygiene, when it should be done and the cleaning agents to use. It also outlines the procedures for decontaminating the hands using alcohol-based hand rub.
Wigglesworth, N. 2019. Infection control 2: hand hygiene using alcohol-based hand rub. Nursing Times, 115 (5) p 24 - 27.
Contact the library for a copy
Article: Enhance the quality of clinical supervision in nursing practice
This article provides an overview of clinical supervision, outlining it's features and functions. It includes 3 case studies relating to group clinical supervision, discussing how this was implemented in each case and the various methods of group working that were used.
Driscoll, J. et al. 2019. Enhance the quality of clinical supervision in nursing practice. Nursing Standard, 34 (5) p 43-47.
Contact the library for a copy
Contact the library for a copy
Article: How to get the most out of reflective discussions
A two page easy to read article on the benefits that reflection can bring to staff working in stressful work areas. Particularly useful for staff undertaking NMC revalidation.
How to get the most out of reflective discussions. Nursing Standard, 2019. 34 (5) p 37-39.
Contact the library for a copy
Contact the library for a copy
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