In the US children's palliative and end of life care has no evidence-based needs assessment measure. This article describes the development of the Parent and Child Need Survey (PCNeeds) which incorporates issues specific to the pediatric palliative and hospice population. It includes the parent-child relationship, the illness' impact on the family and unique decision making needs. The study revealed the tool could be a useful tool in individual assessment, however the tool should also cover more diverse parent and patient populations and test areas related to the needs of siblings and parents' relationships.
Donnelly, J. et al. 2018. Development and assessment of a measure of parent and child needs in pediatric palliative care. Journal of Pain and Symptom Management, 55 (4) p1077-1084.
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Contact the library for a copy