[Article] Parents' experiences of care decisions about children with life-limiting illnesses

Research with 3 bereaved mothers' regarding their experiences of making decisions, and revising and implementing end of life care plans. The research showed that parents understand the importance of planning for the end of their child's life but find the process difficult.  They also find it difficult to verbalise their decisions and value having the decision partly taken away from them.  The author concludes professionals can assist parents by using a non-dissent model of decision making.

Popejoy, E. 2015. Parents' experiences of care decisions about children with life-limiting illnesses.  Nursing Children and Young People 27 (8) p 20 - 24.

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