Research from the Royal Children's Hospital, Melbourne, Australia on whether parents want to be and should be the decision-maker for their child in end of life matters. 25 parents were involved in the study. Their findings showed that parents actively wish to be involved in this role, and can manage its consequences. Furthermore, not being the end of life decision maker was identified in some cases as being detremental to parents' well being.
Sullivan, J., Gillam, L. & Monagle, P. 2015. Parents and end of life decision making for their child: roles and responsibilities. BMJ Supportive & Palliative Care, 25 pp 240 - 248.
To request a copy, click here fill in form and return to library.