Article: Symptomatic palliative care for children with neurodisability

Paediatric palliative care and neurodisability are two relatively new, evolving paediatric sub-specialties.  This UK article explores the unique interface through the three domains of complex symptom management, advanced care planning and end of life care.  It describe the practicalities involved in all three areas and highlight the importance of early referral and the process of "dual" or "parallel" planning.   It covers the specific management of the symptoms dystonia/abnormalities of muscle tone, seizures, pain, agitation, secretions, respiratory failure, and gut failure.

Bendle L & Laddie J (2019) Symptomatic palliative care for children with neurodisability.  Paediatrics and child health: 29:10 p 431 - 435

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