The aim of this guide is to provide families with practical support at this most difficult of times. It answers some of the questions families might have, with some reflections from families on their own experience of losing a child. It sets out what should be expected from children's palliative care services with useful links to further sources of information and support.
Together for Short Lives, 2019. Caring for your child at end of life: a guide for parents and carers.
Available to download