In the Netherlands children have a right to be involved in deciding about their care from the age of 12 and a majority of children and parents consider . This Dutch study describes the implementation of a Palliative Care Guideline with a focus on shared decision making (SDM). The study aimed to explore paediatricians attitudes and thoughts on the guideline and the SDM content. Fifteen paediatricians were recruited and interviewed. Most agreed the patient decision aids were beneficial, however needed to focus more on how to practice SDM with the addition of multiple options.
Dreesens, D. et al. 2019. Clinical practice guidelines for palliative care in children and other strategies to enhance shared decision-making: paediatricians critical reflections. BMC Pediatrics.
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