Designing and obtaining approval for studies involving bereaved parents can be difficult. The aim of this Australian study was to explore bereaved parents' experience of research participation. Nineteen parents whose children had died in an intensive care unit were contacted. Participants were asked to reflect on their experience of research participation with a focus on recruitment methods, timing of research contact, and the location of interviews. The findings showed that despite being emotionally difficult, parents' overall experience of research participation was positive. Their views provide insight to researches and research committees on the best way to conduct research with bereaved parents.
Butler, A. et al. 2019. Bereaved parents' experiences of research participation. BMC Palliative Care.
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