There is a lack of appropriate, validated person-centred outcome measures (PCOM) for paediatric palliative care. This article discusses the findings of an expert group who met to discuss the domains and items to include in a PCOM and the initial steps required in this process.
Harding, R et al. 2019. Advancing the science of outcome measurement in paediatric palliative. International Journal of Palliative Nursing, 25 (2) p 72 - 76.
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