This paper reports on the experiences of a children's hospice from the parents and hospice staff perspective in providing step-down care, assisting the transition from hospital to home. The article was first published in 2017, and reports on part of a study carried out in 2013. The multiple benefits of hospice step down care was evident. Families had described their lives "on hold" while in hospital, where the hospice was considered a home-like environment where they were "living, not existing". Professionals highlighted the role of hospices in empowering families.
Price, J 2018 The role of hospice in the transition from hospital to home for technology-dependent children - A qualitative study. Journal of Clinical Nursing 2018 27 p 396 - 406
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