This study involved in depth interviews with 19 parents who were responsible for carrying out procedures they believed caused distress for their child. Procedures included care and changing of nasogastric tubes, tracheostomy tubes, and oral and nasal suctioning. The findings are presented around five key themes including emotional experiences and response, making sense of the role and changes in experiences over time. Parents identified a number of ways they would like to be supported by healthcare staff with this responsibility.
Spiers, G., & Beresford, B., & Clarke, S. (2017) "It goes against the grain" the experiences of parents administering distressing procedures for their child at home. Health Expectations, 2017 online p1 - 8.
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