In part 3, the guidance addresses the issues that prolonged survival bring including challenges related to psychosocial issues and transitions of care. It discusses assessments and interventions aimed at improving mental health and independence, functionality and quality of life in the domains of living including health care, education, employment, interpersonal relationships, and intimacy.
Birnkrant, D. J. 2018. Duchenne Muscular Dystrophy: Diagnosis and Management Part 3: primary care, emergency management, psychosocial care and transitions of care across the life span. Lancet Neurology. May 17 (5) p 445-455.
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