Written by a US Paediatrician, for both parents and healthcare staff, the book provides detailed, practical diagnostic and therapeutic approaches to all aspects of caring for a child with severe neurological impairment. Chapters include respiratory problems, feeding difficulties, treatment of pain, spasticity, decision making and end of life care. The book is written in a very accessible manner, with the aim to improve parent's knowledge and care. Tables and key points summarise discussions while case studies and stories illustrate how different families approach decision making, communication, care plans and informed consent. Useful for all staff caring for children with severe neurological impairment.
Hauer, J. 2013. Caring for children who have severe neurological impairment. John Hopkins Press.
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