Clinicians are sometimes reluctant to discuss prognosis with parents of children with life-threatening illness, usually because they worry about the emotional impact of this information. However, parents often want this prognostic information because it underpins informed decision-making, especially near the end of life. In addition prognostic disclosure can actually support hope and peace of mind among parents struggling to live with a child's illness. Children, too may need to understand what is ahead to manage uncertainty and make plans. In this article the authors describe the ethical issues involved in disclosure and offers practical guidance for these conversations.
Mack, S. & Joffe, S. 2014. Communicating about prognosis: ethical responsibilities of pediatricians and parents. Pediatrics, February 133, Supplement 1 s21 - 30
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