Many young adults with conditions like Duchenne Muscular Dystrophy (DMD) are living longer, are going through transitional care, and might well have wishes to such as to be in a relationship or even start a family. The authors of this article discuss the ethical considerations around the wish of an adult man with DMD to have a child.
Willis, D., Hart, C. & Willis, T. 2015. A patient with Duchenne muscular dystrophy in transitional care who wishes to have a child. European Journal of Palliative Care, 22 (4) p 175 - 177.
To request a copy, click here fill in form and return to library.
Produced by the East Anglia's Children's Hospices (EACH) Library & Information Service - www.each.org.uk/library
[Article] The impact of a wish: caregivers perceptions of the benefits of granted wishes for children with life-limiting illnesses
This investigation of 682 households explored the benefits of granted wishes to children who are ill, their siblings and caregivers and the benefits they provided. Benefits included the provision of something to look forward to, stress escape and feelings of normalcy. Results support the utility of wish making in palliative care.
Schilling, M. L. & Sarigiani, P. 2014. The impact of a wish: caregivers perceptions of the benefits of granted wishes for children with life-limiting illnesses. Children's Health Care, 43 p 16 - 38.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
Schilling, M. L. & Sarigiani, P. 2014. The impact of a wish: caregivers perceptions of the benefits of granted wishes for children with life-limiting illnesses. Children's Health Care, 43 p 16 - 38.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
[Article] Interventions for bereaved parents following a child's death: A systematic review
This study carried out a systematic review, identifying randomised controlled trials of interventions for parents or siblings bereaved after a child loss. Nine articles describing eight eligible trials were studied with four types of interventions identified: support groups, counselling, psychotherapy and crisis intervention. Most intervention trials showed some effect in at least one outcome measure, however significant methodological issues were also identified in the trials, resulting in the authors concluding there was insufficient evidence to confirm the effect of any of the four interventions.
Endo, K., Yonemoto, N. & Yamada, M. 2015. Interventions for bereaved parents following a child's death: A systematic review. Palliative Medicine, 29 (7) p 590 - 604.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
Endo, K., Yonemoto, N. & Yamada, M. 2015. Interventions for bereaved parents following a child's death: A systematic review. Palliative Medicine, 29 (7) p 590 - 604.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
[Article] Guidelines on blended diet
Following on from Children's Hospice South West article on blended food for enteral feeding, the author Suzanne Brown describes the evidence used behind their practice, and provide more information on the topic.
Brown, S. 2015. Guidelines on blended diet. Nursing Children and Young People, 27 (6) p 14-15.
To request a copy, click here fill in form and return to library.
Brown, S. 2015. Guidelines on blended diet. Nursing Children and Young People, 27 (6) p 14-15.
To request a copy, click here fill in form and return to library.
[New Book] Multicare faith for sick and dying children
Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families.
Nash, P., Parkes, M., Hussain, Z. (2015), Multifaith care for sick and dying children and their families, Jessica Kingsley Publishers.
Click here to request a loan from the library
Nash, P., Parkes, M., Hussain, Z. (2015), Multifaith care for sick and dying children and their families, Jessica Kingsley Publishers.
Click here to request a loan from the library
[New book] Mindfulness for carers: how to manage the demands of caregiving while finding a place for yourself
The author provides an accessible introduction to mindfulness, and explains how simple mindfulness practices and psychological concepts can be used to manage the day-to-day demands of caring effectively, helping caregivers to gain a greater sense of control and maintain a more positive and balanced outlook.
Rezek, C. (2015), Mindfulness for carers: how to manage the demands of caregiving while finding a place for yourself, Jessica Kingsley Publishers.
Click here to request a loan from the library
Rezek, C. (2015), Mindfulness for carers: how to manage the demands of caregiving while finding a place for yourself, Jessica Kingsley Publishers.
Click here to request a loan from the library
[Article] Management of opioid-induced constipation for people in palliative care
This review discusses the recent literature regarding the management of opioid-induced constipation and provides a rational approach to assessing and managing constipation in the palliative care population.
Prichard, D. & Bharucha, A. 2015. Management of opioid-induced constipation for people in palliative care. International Journal of Palliative Nursing, 21 (6) p 272-276.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
Prichard, D. & Bharucha, A. 2015. Management of opioid-induced constipation for people in palliative care. International Journal of Palliative Nursing, 21 (6) p 272-276.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
[Article] Evidence-based guidelines for pressure ulcer management at the end of life
This article discusses patient and risk assessment, prevention and care for pressure ulcers for the palliative care patient, and the recommendations given in the palliative care section of the National and European Pressure Ulcer Advisory Panels.
Langemo, D., Haesler, E., Naylor, W., Tippett, A. & Young, T. 2014. Evidence-based guidelines for pressure ulcer management at the end of life. International Journal of Palliative Nursing, 21 (5) p 225 - 228.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
Langemo, D., Haesler, E., Naylor, W., Tippett, A. & Young, T. 2014. Evidence-based guidelines for pressure ulcer management at the end of life. International Journal of Palliative Nursing, 21 (5) p 225 - 228.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
[Article] Paediatric death and dying: exploring coping strategies of health professionals
The aim of this research was to explore health professionals' perceptions of bereavement support surrounding the loss of a child. Semi-structured interviews were held with 10 health professionals including doctors, nurses and social workers who were directly involved in the care of the dying child and family in 7 cases of paediatric death. The results showed that coping emerged as peer support, personal coping strategies, family support, physical impact of support and spiritual beliefs. The research also revealed health professionals' perceptions of their support provision.
Forster, E. & Hafiz, A. 2015. Paediatric death and dying: exploring coping strategies of health professionals and perceptions of support provision. International Journal of Palliative Nursing, 21 (6) pp 294 - 300.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
Forster, E. & Hafiz, A. 2015. Paediatric death and dying: exploring coping strategies of health professionals and perceptions of support provision. International Journal of Palliative Nursing, 21 (6) pp 294 - 300.
You can request this article from the library or download yourself using your Athens username and password. To request a copy from the library click here fill in form and return to the library.
To access electronically, click here log in using your Athens username and password and search via the CINAHL database.
[Article] Spirituality in nursing practice
Article from the Nursing Standard CPD section, it takes a look at what is meant by spirituality and spiritually competent practice. It examines attitudes to spirituality and offers practical guidance to nurses and healthcare assistants to incorporate spirituality into their practice.
Rogers, M. & Wattis J. 2015. Spirituality in nursing practice. Nursing Standard, 29 (39) p 51-56.
To request a copy, click here fill in form and return to library.
Rogers, M. & Wattis J. 2015. Spirituality in nursing practice. Nursing Standard, 29 (39) p 51-56.
To request a copy, click here fill in form and return to library.
[Article] Using social media in supportive and palliative care research
Recent studies have demonstrated that people near end of life are happy to participate in research and want their voice heard. One way of accessing and letting their voice be heard is through social media (SM). This paper provides a comprehensive summary, including it's theoretical underpinnings, and recent examples of successful uses of SM in healthcare research. Implications for palliative care clinicians, researchers and policy makers are also discussed.
Comabella, C. & Wanat, M. 2015. Using social media in supportive and palliative care research. BMJ Supportive & Palliative Care. 5 p138 - 145.
To request a copy, click here fill in form and return to library.
Comabella, C. & Wanat, M. 2015. Using social media in supportive and palliative care research. BMJ Supportive & Palliative Care. 5 p138 - 145.
To request a copy, click here fill in form and return to library.
[New Book] Bereavement care for families
Bereavement Care for Families is a practical resource that draws upon the evidence supporting family approaches to bereavement care and also provides clinically oriented, strategic guidance on how to incorporate family approaches into other models. Subsequent chapters set forth a detailed, research-based therapeutic model that clinicians can use to facilitate therapy, engage the ambivalent, deal with uncertainty, manage family conflict, develop realistic goals, and more.
Rezek, C. (2015), Mindfulness for carers: how to manage the demands of caregiving while finding a place for yourself, Jessica Kingsley Publishers.
Click here to request a loan from the library
Rezek, C. (2015), Mindfulness for carers: how to manage the demands of caregiving while finding a place for yourself, Jessica Kingsley Publishers.
Click here to request a loan from the library
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