When a child is diagnosed with a life-limiting condition, families need high quality, flexible support designed to meet their individual needs. This chapter looks at this care, illustrated through two case studies to encourage the reader to think from the child and family's perspective. It covers what classifies as a life-limiting illness, the role of children's hospices, care of children, and transition to adult services. A good overview for students or staff new to children's palliative care.
Menezes, A. & Lewin-Taylor, T. Chapter 34: Care of children and young people with life-limiting illness. In: Price, J. & McAlinden, O. (Eds) 2018. Essentials of Nursing Children and Young People. Sage Publishing. p530-538