This paper aimed to explore the decision processes parents face with their child having a gastrostomy and the meaning that parents build around them. Parents of 48 children in a Spanish palliative care unit explore the struggle and emotions they experienced in terms of loss of normality and feeding their child.
Chocarro, L. et al 2019. A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative care needs. International Journal of Palliative Nursing 25 (1) p 19 -28.
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