The aim of this study was to seek the views of UK children's and adult hospices on the availability and challenges of providing services for the 55,721 young adults between the ages of 18 - 40 with life-limiting conditions and/or complex needs which are degenerative, progressive and diverse. The data was collected in 2016 from 76 hospices via an online survey. The survey findings showed a lack of existing adult respite services; lack of funding and capacity; lack of skilled workforce in adult hospices; and the need for better integrated service provision. There were examples of good collaborative working but with an increasing population of young adults and pressure on families, it is vital that services work together to find sustainable solutions.
Knighting, K. et al. 2018. Meeting the needs of young adults with life-limiting conditions: A UK survey of current provision and future challenges for hospices. Journal of Advanced Nursing, May 2018 (epub)
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