To date, this prospective study is the largest study exploring pain in children with nonmalignant life-limiting diseases. The findings showed that pain in children with progressive neurologic diseases was common, under-recognised and undertreated. Analgesia management in this vulnerable group currently lacks standard assessment tools, consensus treatment guidelines and prospective randomized controlled trials.
Friedrichsdorf, S. et al. 2017. Pain reporting and analgesia management in 270 children with progressive neurologic, metabolic or chromosomally based conditions with impairment of the central nervous system: cross-sectional, baseline results from an observational, longitudinal study. Journal of Pain Research, 2017. Vol 10, p 1841 - 1851.
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