Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside observations of how such things worked in her own family's story.
Langton-Gilks, S. 2018. Follow the child: planning and having the best end of life care for your child. Jessica Kingsley Publishers.
This book is on order and hoping to be available from 8th March onwards
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