The aim of this research was to ascertain healthcare staff's views on the acceptability and usefulness of a handbook and web based resource (Caring Decisions) that was designed as an aid for parents facing end of life decisions for their child. The research confirmed the usefulness of the resource with two major themes identified: providing families with empowerment, and the usefulness of it for staff as a valuable tool in end of life communication. The authors concluded that although it's usefulness had been demonstrated, it's use was dependent on healthcare teams.
Delany, C et al. 2017. A good resource for parents, but will clinicians use it? Evaluation of a resource for paediatric end of life decision making. BMC Palliative Care
Available to download