This study uses semi-structured interviews relating to the approaches used in, and experience of, advance care planning for children and young people with life-limiting conditions. It highlights that parents' approaches vary according to the type of decision required and also the time when the decision is sought. The study showed that parents views often change over time and it's important to allow them to keep their options open.
Beecham, E et al. 2017. Keeping all options open: Parents' approaches to advance care planning. Health Expectations (20) p 675-684 [online]
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