Research from Martin House Children's Hospice. Between 2011 - 2013 the hospice collected information about the range of services available to children and young people with life-limiting conditions and their families living in the region. The research also explored the views of professionals and families about the care and support available, and the strategies and resources families draw upon in order to access the support they need. This summary presents the key messages and findings and concludes with implications and recommendations for policy and practice.
Martin House Children's Hospice, 2014. Supporting children with life-limiting conditions and their families - a regional evaluation - project summary, April 2014. Martin House.
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The full report, published last year is also available to download